Motor Neurone Disease (MND)

Amyotrophic lateral sclerosis (ALS)

Lou Gehrig’s Disease

The vast majority of people and health professionals believe that MND is incurable, there’s nothing you can do to help it and you die from it within a few years of diagnosis. Sadly, many do.

No one wants to be given false hope when dealing with a disease like Motor Neurone Disease (MND). However, if you have this disease you might like to know about some people who have MND and are stable, improving or recovered. 

The Healing ALS website , updated since the 2022 confernce, is a useful resource for MND sufferers to see how some sufferers have been able to stabilise and even reverse their symptoms. People who had been told they would not survive beyond one or two years and to get their affairs in order. They survived MND and are living for 20-plus years after their diagnosis. It is hard to believe, but there they are, for you to read and see, survivors telling their stories. Treatment differs for each person, and by necessity includes a wide range of therapies. These are not simple, easy or rapid recoveries, and are hard-won, but won nonetheless.

Neurologist Dr Richard Bedlack from Duke ALS clinic discusses Alternative and Off Label Treatments (AOTS) and describes trials using these treatments that have merit.

With such a diagnosis as ALS, there is little harm in trying wholistic treatment. It is easy to think that ‘if it’s natural, it can’t be that strong’ or, ‘Because it’s natural, I can just give it a go myself.’ For any serious disease, it is important to find a good integrative doctor who can discover why a person has MND. It is also important to assess the effectiveness of treatment through targeted testing. If a treatment is not found to be effective, another can be tried.

A long YouTube clip of an ALS symposium: Update 2021 Signs of Progress, Reasons for Hope, is worth the watch.

Read about a recovery story in Good News for People with Bad News  After being diagnosed with MND, struggling to walk, and pick up objects, one man describes how he carefully investigated a simple treatment, took increasing amounts of it over many years. He defied his diagnosis and improved his condition.

Nothing to lose, maybe something to gain.