Recovering from Motor Neurone Disease (MND) also known as Lou Gehrig’s Disease / Amyotrophic lateral sclerosis (ALS)
No one wants to be given false hope when dealing with a disease like Motor Neurone Disease (MND). However, if you have this disease you might like to know about some people who have MND and are stable, improving or recovered.
The website Healed/Healing PALS shows a number of people who, refusing to accept their disease, sought treatment which has stabilised and even reversed their symptoms. They were told they would not survive beyond one or two years and to get their affairs in order. They have survived MND and are living for 20-plus years after their diagnosis. It is hard to believe, but there they are, alive and well, telling their stories on the internet. Treatment differs for each person, and by necessity includes a wide range of therapies. Not simple, easy or rapid, their recoveries are hard-won, but are won nonetheless.
Neurologist Dr Richard Bedlack from Duke ALS clinic discusses Alternative and Off Label Treatments (AOTS) and describes trials using these treatments that have merit.
The vast majority of people and health professionals believe that MND is incurable, there’s nothing you can do to help it and you die from it within a few years of diagnosis. Sadly, many do.
There is little harm in trying wholistic treatment, but it is easy to think that ‘if it’s natural, it can’t be that strong’ or, ‘Because it’s natural, I can just give it a go myself.’
For any neurological disease, it is important to find a good integrative doctor who can conduct tests that may identify some reasons why a person has MND that can guide restorative treatment.
A long YouTube clip of an ALS symposium: Update 2021 Signs of Progress, Reasons for Hope, is worth the watch.
You can read about a recovery story in Good News for People with Bad News After being diagnosed with MND, struggling to walk, and pick up objects, one man describes how he carefully investigated a simple treatment, took increasing amounts of it over many years. He defied his diagnosis and improved his condition.